Letter to editor

M.E. Awareness Week

9 May 2011 at 20:10 | 904 views

First Name : Dr John H

Last Name : Greensmith

Organisation : ME Free For All.org

Phone Number : +44 (0) 117 956 0150

Our project, launched in plenty of time for M.E. Awareness Week (8-15 May)
2011, “A sentence of M.E.”, has a deliberately obvious double meaning: The
horrible experience of this largely invisible and unpredictable disabling
illness that seems to some like a prison sentence is, literally, just that
for the most severely affected, who are housebound or bedridden.

So, we are asking people, who are affected by M.E, (Myalgic
), not only as sufferers but also their carers, family,
friends, maybe even doctors and nurses, doing their best to care for them,
to express how it is in just one sentence, in order to improve public
knowledge and raise awareness.

You may wish to use your sentence to tell everyone about a single episode,
or about how it is to endure M.E. day after day, year in year out. It’s up
to you. And you can submit as many sentences as you like. You can do so in
your own name or anonymously if you prefer (say, just a first name, or a
made up name, or “M.E. sufferer, 10 years, London”). We’ll put them all on
our website, Facebook, Twitter and M.E. sufferers from all over the world
are invited to take part.

There is a universally recognised International M.E. Awareness Day on 12th
May every year but, for us, every day is M.E. Awareness Day. So, there is
no closing date for this one. Send any sentences you have to
drjohngreensmith@mefreeforall.org with “A sentence of M.E.” in the subject

Best wishes
Dr John H Greensmith
ME Free For All.org
36a North Street
BS16 5SW
United Kingdom
+44 (0) 117 956 0150